HomeThe Story of Hailey MaeSki Away SMA March 17, 2018Registration and Details for the Ski WeekendContact Info/How to Help


Hailey Mae Smelser

The Hailey Mae Foundation was started to keep Hailey's memory alive and, of course, to help in the fight against Spinal Muscular Atrophy; the #1 genetic killer of children under 2.

The goal of the Hailey Mae Foundation is to raise awareness and enough funds so that a cure can be found and one less child has to die because of this horrible disease.

The Ski Away SMA fund-raiser will be held on March 17, 2018 at Magic Mountain in Londonderry, Vermont.  All proceeds from the event will go directly to help fund SMA research and a small portion of the money raised will purchase adaptive equipment such as tricycles for children with SMA. 

To learn more about SMA and where your donation goes, visit Families of Spinal Muscular Atrophy  and www.columbiasma.org.  Donate or sign up for a fun weekend in Vermont today!

The Hailey Mae Foundation is a recognized 501(3)(c) organization